Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Scleroderma


Synonyms of Scleroderma
  • Progressive Systemic Sclerosis
  • PSS
  • Sclerosis, Familial Progressive Systemic
  • Systemic Sclerosis

Disorder Subdivisions

  • CREST Syndrome
  • Linear Scleroderma
  • Morphea


General Discussion
Scleroderma is a rare autoimmune connective tissue disorder characterized by abnormal thickening of the skin. Connective tissue is composed of collagen, which supports and binds other body tissues. There are several types of scleroderma. Some types affect certain, specific parts of the body, while other types can affect the whole body and internal organs (systemic). Scleroderma is also known as progressive systemic sclerosis. The exact cause of scleroderma is unknown.

Organizations related to Scleroderma
  • American Autoimmune Related Diseases Association, Inc.
    22100 Gratiot Avenue
    Eastpointe MI 48021
    Phone #: 586-776-3900
    800 #: 800-598-4668
    e-mail: aarda@aarda.org
    Home page: http://www.aarda.org/
  • AutoImmunity Community
    None
    None None None
    Phone #: (91-9) -552-9057
    800 #: N/A
    e-mail: bandrews@autoimmunitycommunity.org
    Home page: http://autoimmunitycommunity.org
  • Autoimmune Information Network, Inc
    PO Box 4121
    Brick NJ 08723
    Phone #: 732-664-9259
    800 #: N/A
    e-mail: autoimmunehelp@aol.com
    Home page: http://www.aininc.org
  • European Society for Immunodeficiencies (ESID)
    c/o Dr. Esther de Vries
    Hertogenbosch None 5200 ME's
    Phone #: +31- 73--6992965
    800 #: N/A
    e-mail: info@esid.org
    Home page: http://www.esid.org
  • International Scleroderma Network
    7455 France Ave So #266
    Edina MN 55435
    Phone #: 952-831-3091
    800 #: 800-564-7099
    e-mail: site-inquiries@sclero.org
    Home page: http://www.sclero.org
  • Juvenile Scleroderma Network, Inc.
    1204 W. 13th St
    San Pedro CA 90731
    Phone #: 310-519-9511
    800 #: 866-338-5892
    e-mail: jsdinfo@jsdn.org
    Home page: http://www.jsdn.org
  • Lupus Society of Alberta
    Suite 200, 1301 - 8 St. SW
    Calgary, AB None T2R 1B7
    Phone #: 403--22-8-7956
    800 #: 888--24-2-9182
    e-mail: lupuslsa@shaw.ca
    Home page: www.lupus.ab.ca
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: mums@netnet.net
    Home page: http://www.netnet.net/mums/
  • Madisons Foundation
    PO Box 241956
    Los Angeles CA 90024
    Phone #: 310-264-0826
    800 #: N/A
    e-mail: getinfo@madisonsfoundation.org
    Home page: http://www.madisonsfoundation.org
  • NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
    1 AMS Circle
    Bethesda MD 20892-3675
    Phone #: 301-495-4484
    800 #: 877-226-4267
    e-mail: NIAMSinfo@mail.nih.gov
    Home page: http://www.niams.nih.gov/Health_Info
  • National Registry for Childhood Onset Scleroderma
    726 South BST, 3500 Terrace St.
    Pittsburgh PA 15261
    Phone #: 412-383-8674
    800 #: 800-603-8960
    e-mail: jablonj@msx.dept-med.pitt.edu
    Home page: http://www.arthritis.pitt.edu
  • Parry-Romberg Syndrome Resource, Inc.
    4815 Crystal River Ct.
    Indianapolis IN 46240
    Phone #: 317-566-8149
    800 #: N/A
    e-mail: prsresource@comcast.net
    Home page: http://www.prsresource.com
  • Scleroderma Foundation
    300 Rosewood Drive Byfield, MA 01922
    Danvers MA 01923
    Phone #: 978-463-5843
    800 #: 800-722-4673
    e-mail: sfinfo@scleroderma.org
    Home page: http://www.scleroderma.org
  • Scleroderma Research Foundation
    220 Montgomery Street
    San Francisco CA 94104
    Phone #: 415-834-9444
    800 #: 800-441-2873
    e-mail: info@sclerodermaRESEARCH.org
    Home page: http://www.srfcure.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html