Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Spina Bifida


Synonyms of Spina Bifida
  • Neural Tube Defect
  • SB

Disorder Subdivisions

  • Spina Bifida Cystica
  • Spina Bifida Occulta


General Discussion
Spina bifida is characterized by incomplete closure of certain bones of the spinal column (vertebrae), leaving a portion of the spinal cord exposed. Part of the contents of the spinal canal may protrude through this opening. In the most severe form, rachischisis, the opening is extensive. Spina bifida may cause difficulties with bladder control, walking and/or other functions, depending on the severity of associated symptoms.

Organizations related to Spina Bifida
  • American Association of Neurological Surgeons
    5550 Meadowbrook Drive
    Rolling Meadows IL 60008-3852
    Phone #: 847-378-0500
    800 #: 888-566-2267
    e-mail: info@aans.org
    Home page: http://www.NeurosurgeryToday.org
  • Association for Spina Bifida and Hydrocephalus
    ASBAH House
    Peterborough None PE1 2UQ
    Phone #: --
    800 #: --
    e-mail: postmaster@asbah.org
    Home page: http://www.asbah.org
  • Birth Defect Research for Children
    930 Woodcock Rd
    Orlando FL 32803
    Phone #: 407-895-0802
    800 #: --
    e-mail: staff@birthdefects.org
    Home page: http://www.birthdefects.org
  • Chiari & Syringomyelia Foundation (CSF)
    29 Crest Loop
    Staten Island NY 10312
    Phone #: 718--96-6-2593
    800 #: N/A
    e-mail: dpoppe@CSFinfo.org
    Home page: http://www.CSFinfo.org
  • Christopher Reeve Paralysis Foundation
    500 Morris Ave
    Springfield NJ 07081
    Phone #: 973-379-2690
    800 #: 800-225-0292
    e-mail: info@crof.org
    Home page: http://www.crpf.org,
  • Easter Seals National Headquarters
    230 West Monroe Street
    Chicago IL 60606-4802
    Phone #: 312-726-6200
    800 #: 800-221-6827
    e-mail: info@easterseals.com
    Home page: http://www.easterseals.com
  • Fetal Hope Foundation
    9786 S Holland Street
    Littelton CO 80127
    Phone #: 303-932-0553
    800 #: 877-789-4673
    e-mail: info@fetalhope.org
    Home page: http://www.fetalhope.org
  • International Federation for Spina Bifida and Hydrocephalus
    Attn. Els De Clercq
    Brussels None B1000
    Phone #: --
    800 #: --
    e-mail: info@ifglobal.org
    Home page: http://www.ifglobal.org
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: mums@netnet.net
    Home page: http://www.netnet.net/mums/
  • Madisons Foundation
    PO Box 241956
    Los Angeles CA 90024
    Phone #: 310-264-0826
    800 #: N/A
    e-mail: getinfo@madisonsfoundation.org
    Home page: http://www.madisonsfoundation.org
  • March of Dimes Birth Defects Foundation
    1275 Mamaroneck Avenue
    White Plains NY 10605
    Phone #: 914-428-7100
    800 #: 888-663-4637
    e-mail: Askus@marchofdimes.com
    Home page: http://www.marchofdimes.com
  • National Institute of Neurological Disorders and Stroke (NINDS)
    31 Center Drive
    Bethesda MD 20892-2540
    Phone #: 301-496-5751
    800 #: 800-352-9424
    e-mail: braininfo@ninds.nih.gov
    Home page: http://www.ninds.nih.gov/
  • New Horizons Un-Limited, Inc.
    811 East Wisconsin Ave
    Milwaukee WI 53202
    Phone #: 414-299-0124
    800 #: N/A
    e-mail: horizons@new-horizons.org
    Home page: http://www.new-horizons.org
  • Pathways Awareness Foundation
    150 North Michigan Ave.,Ste.2100
    Chicago IL 60601
    Phone #: 312-893-6620
    800 #: 800-326-8154
    e-mail: friends@pathwaysawareness.org
    Home page: http://www.pathwaysawareness.org
  • Sj?ldne Diagnoser / Rare Disorders Denmark
    Frederiksholms Kanal 2, 3rd Floor
    Copenhagen K None 1220
    Phone #: 45 -33 -14 00 10
    800 #: N/A
    e-mail: mail@sjaeldnediagnoser
    Home page: http://www.raredisorders.dk
  • Spina Bifida Association of America
    4590 MacArthur Boulevard NW
    Washington DC 20007-4226
    Phone #: 202-944-3285
    800 #: 800-621-3141
    e-mail: sbaa@sbaa.org
    Home page: http://www.sbaa.org
  • Spina Bifida Hydrocephalus Queensland
    PO Box 8022
    Woolloongabba, Queensland None 4120
    Phone #: (07-) 3-844 4600
    800 #: N/A
    e-mail: info@sbhqueensland.org.au
    Home page: http://www.spinabifida.org
  • Spina Bifida and Hydrocephalus Association of Canada
    #977-167 Lombard Avenue
    Winnipeg, Manitoba None R3B 0V3
    Phone #: 204--92-5-3650
    800 #: 800--56-5-9488
    e-mail: spinab@mts.net
    Home page: http://www.sbhac.ca
  • Spina Bifida and Hydrocephalus Association of Ontario
    55 Richmond St W
    Toronto, Ontario None M5V 3B1
    Phone #: 416--21-4-1056
    800 #: N/A
    e-mail: provinivial@sbhao.on.ca
    Home page: http://www.sbhao.on.ca



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html