Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Syringomyelia


Synonyms of Syringomyelia
  • Hydromyelia
  • Morvan Disease
  • Spinal Cord Cyst
  • Syringohydromyelia

Disorder Subdivisions



    General Discussion
    Syringomyelia is a neurological disorder characterized by the formation of a fluid-filled cyst (syrinx) within the spinal cord. This cyst may, for unknown reasons, expand during adolescence or the young adult years, destroying the center of the spinal cord as it does.

    As the syrinx expands, it affects the nerves that stimulate the patient?s legs, arms, back and shoulders. In turn, the affected individual may feel considerable pain and weakness, and may lose the ability to distinguish hot from cold objects. The combination of symptoms and signs may vary considerably from person to person, depending on where in the spine the syrinx is located and how much it expands over time. Often, the symptoms develop slowly. Unless the condition is treated surgically, it may lead to neurological deficits and chronic, intense pain.

    Organizations related to Syringomyelia
    • American Syringomyelia Alliance Project, Inc. (ASAP)
      300 N. Green Street, Suite 412
      Longview TX 75601
      Phone #: 903-236-7079
      800 #: 800-272-7282
      e-mail: info@asap.org
      Home page: http://www.asap.org
    • C&S Patient Education Foundation
      320 Osprey Court
      Wexford PA 15090
      Phone #: 724-940-0116
      800 #: N/A
      e-mail: N/A
      Home page: N/A
    • Canadian Syringomyelia Network
      69 Penny Crescent
      Ontario None L3P 5X7
      Phone #: 905-471-8278
      800 #: --
      e-mail: barb@csn.ca
      Home page: http://www.csn.ca
    • Chiari & Syringomyelia Foundation (CSF)
      29 Crest Loop
      Staten Island NY 10312
      Phone #: 718--96-6-2593
      800 #: N/A
      e-mail: dpoppe@CSFinfo.org
      Home page: http://www.CSFinfo.org
    • Chiari and Syringomyelia Network
      4231 N. Winfield Scott Plaza #7
      Scottsdale AZ 85251
      Phone #: 480-350-7177
      800 #: 866-661-7607
      e-mail: csinfo@chiarisn.org
      Home page: http://www.chiarisn.org
    • Christopher Reeve Paralysis Foundation
      500 Morris Ave
      Springfield NJ 07081
      Phone #: 973-379-2690
      800 #: 800-225-0292
      e-mail: info@crof.org
      Home page: http://www.crpf.org,
    • Christopher S. Burton Syringomyelia Foundation, Inc.
      3701 NW 5th Ave.
      Fort Lauderdale FL 33309
      Phone #: 954-727-5137
      800 #: N/A
      e-mail: info@thesmfoundation.org
      Home page: http://www.theSMfoundation.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • World Arnold Chiari Malformation Association
      31 Newtown Woods Road
      Newtown Square PA 19073
      Phone #: 610-353-4737
      800 #: N/A
      e-mail: internautbhm2@comcast.net
      Home page: http://www.wacma.com



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html