Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Systemic Capillary Leak Syndrome


Synonyms of Systemic Capillary Leak Syndrome
  • Clarkson's syndrome
  • SCLS

Disorder Subdivisions



    General Discussion
    Systemic capillary leak syndrome is a rare acquired disorder characterized by acute and severe recurrent attacks associated with a rapid fall in blood pressure. Attacks often last several days and require emergency care. They are sometimes fatal. SCLS occurs most often in adults and the disease is very rare in children. SCLS is not hereditary.

    Organizations related to Systemic Capillary Leak Syndrome
    • Genetic and Rare Diseases (GARD) Information Center
      PO Box 8126
      Gaithersburg MD 20898-8126
      Phone #: 301-519-3194
      800 #: 888-205-2311
      e-mail: gardinfo@nih.gov
      Home page: http://www.genome.gov/10000409
    • Greipp, Philip R, M.D.
      Professor of Medicine and Laboratory Medicine and Pathology
      Rochester MN 55905
      Phone #: (50-7) -284-9094
      800 #: N/A
      e-mail: greipp@mayo.edu
      Home page: http://www.mayo.org
    • NIH/National Heart, Lung and Blood Institute Information Center
      P.O. Box 30105
      Bethesda MD 20824-0105
      Phone #: 301-592-8573
      800 #: --
      e-mail: nhlbiinfo@rover.nhlbi.nih.gov
      Home page: N/A



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html