Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Tethered Spinal Cord Syndrome


Synonyms of Tethered Spinal Cord Syndrome
  • Congenital Tethered Cervical Spinal Cord Syndrome
  • Occult Spinal Dysraphism Sequence
  • Tethered Cervical Spinal Cord Syndrome
  • Tethered Cord Malformation Sequence
  • Tethered Cord Syndrome

Disorder Subdivisions



    General Discussion
    Tethered Spinal Cord Syndrome is a disorder characterized by progressive neurological deterioration that results from compression of the lowermost bundle of nerves of the spinal cord (cauda equina). It is most commonly associated with a defective closing of the neural tube (precursor of the spinal column) during embryonic development (Spina Bifida).

    Organizations related to Tethered Spinal Cord Syndrome
    • American Association of Neurological Surgeons
      5550 Meadowbrook Drive
      Rolling Meadows IL 60008-3852
      Phone #: 847-378-0500
      800 #: 888-566-2267
      e-mail: info@aans.org
      Home page: http://www.NeurosurgeryToday.org
    • Birth Defect Research for Children
      930 Woodcock Rd
      Orlando FL 32803
      Phone #: 407-895-0802
      800 #: --
      e-mail: staff@birthdefects.org
      Home page: http://www.birthdefects.org
    • International Federation for Spina Bifida and Hydrocephalus
      Attn. Els De Clercq
      Brussels None B1000
      Phone #: --
      800 #: --
      e-mail: info@ifglobal.org
      Home page: http://www.ifglobal.org
    • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
      150 Custer Court
      Green Bay WI 54301-1243
      Phone #: 920-336-5333
      800 #: 877-336-5333
      e-mail: mums@netnet.net
      Home page: http://www.netnet.net/mums/
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • National Institute of Neurological Disorders and Stroke (NINDS)
      31 Center Drive
      Bethesda MD 20892-2540
      Phone #: 301-496-5751
      800 #: 800-352-9424
      e-mail: braininfo@ninds.nih.gov
      Home page: http://www.ninds.nih.gov/
    • Spina Bifida Association of America
      4590 MacArthur Boulevard NW
      Washington DC 20007-4226
      Phone #: 202-944-3285
      800 #: 800-621-3141
      e-mail: sbaa@sbaa.org
      Home page: http://www.sbaa.org
    • Spina Bifida and Hydrocephalus Association of Canada
      #977-167 Lombard Avenue
      Winnipeg, Manitoba None R3B 0V3
      Phone #: 204--92-5-3650
      800 #: 800--56-5-9488
      e-mail: spinab@mts.net
      Home page: http://www.sbhac.ca



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html