Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Turcot Syndrome


Synonyms of Turcot Syndrome
  • Brain tumor-polyposis syndrome
  • Glioma-polyposis syndrome

Disorder Subdivisions



    General Discussion
    Turcot syndrome is a rare inherited disorder characterized by the association of benign growths (adenomatous polyps) in the mucous lining of the gastrointestinal tract with tumors of the central nervous system. Symptoms associated with polyp formation may include diarrhea, bleeding from the end portion of the large intestine (rectum), fatigue, abdominal pain, and weight loss. Affected individuals may also experience neurological symptoms, depending upon the type, size and location of the associated brain tumor. Some researchers believe that Turcot syndrome is a variant of familial adenomatous polyposis. Others believe that it is a separate disorder. The exact cause of Turcot syndrome is not known.
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    Organizations related to Turcot Syndrome
    • American Brain Tumor Association
      2720 River Road
      Des Plaines IL 60018
      Phone #: 847-827-9910
      800 #: 800-886-2282
      e-mail: info@abta.org
      Home page: http://www.abta.org
    • American Cancer Society, Inc.
      1599 Clifton Road NE
      Atlanta GA 30329
      Phone #: 404-320-3333
      800 #: 800-227-2345
      e-mail: N/A
      Home page: http://www.cancer.org
    • Brain Tumor Foundation for Children, Inc.
      1835 Savoy Drive
      Atlanta GA 30341
      Phone #: 770-458-5554
      800 #: --
      e-mail: btfc@bellsouth.net
      Home page: http://www.braintumorkids.org
    • Brain Tumour Foundation of Canada
      620 Colborne Street
      Ontario None N6B 3R9
      Phone #: 519-642-7755
      800 #: 800-265-5106
      e-mail: btfc@btfc.org
      Home page: http://www.braintumour.ca
    • Brain Tumour Foundation, United Kingdom
      P.O. Box 123
      Tewkesbury None GL20 7PT
      Phone #: 016-84 -290439
      800 #: --
      e-mail: btf.uk@virgin.net
      Home page: N/A
    • Cancer.Net
      American Society of Clinical Oncology
      Alexandria VA 22314
      Phone #: 571-483-1780
      800 #: 888-651-3038
      e-mail: contactus@cancer.net
      Home page: http://www.cancer.net/patient
    • Children's Brain Tumor Foundation
      274 Madison Avenue
      New York NY 10016
      Phone #: 212-448-9494
      800 #: 866-228-4673
      e-mail: info@cbtf.org
      Home page: http://www.cbtf.org
    • Familial GI Cancer Registry
      Mt. Sinai Hospital
      ON None M5G 1X5
      Phone #: 416-586-8334
      800 #: --
      e-mail: tberk@mtsinai.on.ca
      Home page: http://www.mtsinai.on.ca/familialgicancer
    • Familial Polyposis Registry
      Department of Colorectal Surgery
      Cleveland OH 44195-5001
      Phone #: 216-444-6470
      800 #: --
      e-mail: N/A
      Home page: N/A
    • Friends of Cancer Research
      2231 Crystal Drive
      Arlington VA 22202
      Phone #: 703-302-1503
      800 #: N/A
      e-mail: info@focr.org
      Home page: http://www.focr.org
    • Hereditary Colorectal Cancer Registry
      550 N. Broadway
      Baltimore MD 21205-2011
      Phone #: 410-955-4041
      800 #: N/A
      e-mail: hccregistry@jhmi.edu
      Home page: http://www.coloncancer.org
    • Intestinal Multiple Polyposis and Colorectal Cancer Registry
      P.O. Box 11
      Conyngham PA 18219
      Phone #: 717-788-3712
      800 #: --
      e-mail: user291524@aol.com
      Home page: N/A
    • Madisons Foundation
      PO Box 241956
      Los Angeles CA 90024
      Phone #: 310-264-0826
      800 #: N/A
      e-mail: getinfo@madisonsfoundation.org
      Home page: http://www.madisonsfoundation.org
    • March of Dimes Birth Defects Foundation
      1275 Mamaroneck Avenue
      White Plains NY 10605
      Phone #: 914-428-7100
      800 #: 888-663-4637
      e-mail: Askus@marchofdimes.com
      Home page: http://www.marchofdimes.com
    • NIH/National Digestive Diseases Information Clearinghouse
      2 Information Way
      Bethesda MD 20892-3570
      Phone #: 301-654-3810
      800 #: 800-891-5389
      e-mail: nddic@info.niddk.nih.gov
      Home page: http://www.niddk.nih.gov
    • National Brain Tumor Society
      124 Watertown Street, Suite 2D
      Watertown MA 02472
      Phone #: 617-924-9997
      800 #: (80-0) -770-8287
      e-mail: info@braintumor.org
      Home page: http://www.braintumor.org
    • National Cancer Institute
      6116 Executive Blvd, MSC 8322, Room 3036A
      Bethesda MD 20892-8322
      Phone #: 301-435-3848
      800 #: 800-422-6237
      e-mail: N/A
      Home page: http://www.cancer.gov
    • OncoLink: The University of Pennsylvania Cancer Center Resource
      3400 Spruce Street
      Philadelphia PA 19104-4283
      Phone #: 215-349-5445
      800 #: --
      e-mail: editors@oncolink.upenn.edu
      Home page: http://www.oncolink.upenn.edu
    • Southeastern Hereditary Colorectal Cancer Registry
      University Hospital
      Augusta GA 30910-3599
      Phone #: 706-774-8900
      800 #: --
      e-mail: cwheeler@uh.org
      Home page: N/A
    • Strang-Cornell Hereditary Colon Cancer Program
      428 East 72nd Street
      New York NY 10021
      Phone #: 212-794-4900
      800 #: --
      e-mail: mbertagnolli@partners.org
      Home page: http://www.strang.org



    For a Complete Report

    This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html