Diseases & Conditions


A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Von Willebrand Disease


Synonyms of Von Willebrand Disease
  • vWD

Disorder Subdivisions

  • Angiohemophilia
  • Constitutional Thrombopathy
  • Minot-Von Willebrand Disease
  • Pseudohemophilia
  • Vascular Hemophilia
  • Von Willebrand disease type I
  • Von Willebrand disease type II
  • Von Willebrand disease type III
  • Willebrand-Juergens Disease


General Discussion
Von Willebrand disease (vWD) is an inherited bleeding disorder resulting in prolonged bleeding. Certain specialized proteins called clotting factors aid the blood to clot. Individuals with von Willebrand disease have a defect in or deficiency of one of these proteins known as von Willebrand factor. They may also have low levels of an additional factor known as factor VIII.

Deficient or defective von Willebrand factor results in improper functioning of platelets, specialized red blood cells that mass together to form clots to stop bleeding. In individuals with von Willebrand disease, platelets do not stick to holes in blood vessels and bleeding is prolonged.

Von Willebrand disease is inherited as an autosomal dominant or recessive trait.

Organizations related to Von Willebrand Disease
  • Canadian Hemophilia Society
    625 President Kennedy
    Quebec None H3A 1K2
    Phone #: 514-848-0503
    800 #: 800-668-2686
    e-mail: chs@hemophilia.ca
    Home page: http://www.hemophilia.ca
  • Hemophilia Federation of America
    1405 West Pinhook Road
    Lafayette LA 70503
    Phone #: 337-261-9787
    800 #: 800-203-9797
    e-mail: s.swindle@cox-internet.com
    Home page: http://www.hemophiliafed.org
  • Irish Haemophilia Society
    Iceland House
    Dublin None 7
    Phone #: 01 -872-4466
    800 #: N/A
    e-mail: haemophiliasociety@eircom.net
    Home page: http://www.haemophilia-society.ie
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: mums@netnet.net
    Home page: http://www.netnet.net/mums/
  • Madisons Foundation
    PO Box 241956
    Los Angeles CA 90024
    Phone #: 310-264-0826
    800 #: N/A
    e-mail: getinfo@madisonsfoundation.org
    Home page: http://www.madisonsfoundation.org
  • NIH/National Heart, Lung and Blood Institute Information Center
    P.O. Box 30105
    Bethesda MD 20824-0105
    Phone #: 301-592-8573
    800 #: --
    e-mail: nhlbiinfo@rover.nhlbi.nih.gov
    Home page: N/A
  • National Hemophilia Foundation
    116 West 32nd Street
    New York NY 10001
    Phone #: 212-328-3737
    800 #: 800-424-2634
    e-mail: gwidlundDhemophilia.org
    Home page: http://www.hemophilia.org
  • World Federation of Hemophilia
    1425 Rene Levesque Boulevard West
    Quebec Intl H3G 1T7
    Phone #: 514--87-5-7944
    800 #: --
    e-mail: wfh@wfh.org
    Home page: http://www.wfh.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html