Disorder Subdivisions
10500 SW Starr Drive
Tualatin OR 97062
Phone #: 503-885-0455
800 #: --
e-mail: [email protected]
Home page: http://www.alagille.org
75 Maiden Lane
New York NY 10038
Phone #: 212-668-1000
800 #: 800-465-4837
e-mail: [email protected]
Home page: http://www.liverfoundation.org
None
None IN None
Phone #: N/A
800 #: --
e-mail: [email protected]
Home page: http://www.liverkids.org.au
c/o Joan Hines, The Children's Hospital
Aurora CO 80045
Phone #: 720-777-2598
800 #: N/A
e-mail: [email protected]
Home page: http://www.rarediseasesnetwork.org/clic
507 Capitol Court
Washington DC 20002
Phone #: 202-544-7497
800 #: --
e-mail: [email protected]
Home page: http://www.ddnc.org
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
2 Information Way
Bethesda MD 20892-3570
Phone #: 301-654-3810
800 #: 800-891-5389
e-mail: [email protected]
Home page: http://www.niddk.nih.gov
1010 Wayne Ave
Silver Spring MD 20910
Phone #: 301-565-3842
800 #: 800-433-5255
e-mail: [email protected]
Home page: http://www.thearc.org/
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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