Disorder Subdivisions
71-73 Main Street
Chesterfield None S44 6UR
Phone #: 012-46 -828194
800 #: --
e-mail: [email protected]
Home page: http://www.diamondblackfan.org.uk
Schneider Children's Hospital
New Hyde Park NY 11040
Phone #: 718-470-3610
800 #: 888-884-3227
e-mail: [email protected]
Home page: http://www.dbar.org
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
31 Center Drive MSC 2480
Bethesda MD 20892-2480
Phone #: 301-592-8573
800 #: --
e-mail: [email protected]
Home page: http://www.nhlbi.nih.gov/
NIH/ National Institute of Neurological Disorders and Strokes
Bethesda MD 20892
Phone #: 301-496-8350
800 #: --
e-mail: N/A
Home page: N/A
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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