Antiphospholipid Syndrome / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Antiphospholipid Syndrome

Synonyms of Antiphospholipid Syndrome

Antiphospholipid Antibody Syndrome
APLS
APS
Hughes Syndrome
Lupus Anticoagulant Syndrome
PAPS
Primary Antiphospholipid Syndrome

Disorder Subdivisions

CAPS
Catastrophic Antiphospholipid Syndrome (Asherson?s Syndrome)

General Discussion
Antiphospholipid syndrome (APS) is a rare immunological disorder characterized by recurring blood clots. Blood clots can form in any blood vessel of the body. The specific symptoms and severity of APS vary greatly from case to case depending upon the exact location of a blood clot and the organ system affected. APS may occur as an isolated disorder (primary antiphospholipid syndrome) or may occur along with another autoimmune disorder such as systemic lupus erythematosus (secondary antiphospholipid syndrome).

APS is characterized by the presence of antiphospholipid antibodies in the body. Antibodies are specialized proteins produced by the body?s immune system to fight infections. In individuals with APS, certain antibodies mistakenly attack healthy tissue. This healthy tissue is a certain proteins that bind to phospholipids. Phospholipids are a type of fat molecule that is involved in the proper function of cell membranes and found throughout the body. The reason for these antiphospholipid antibodies attacking the phospholipid proteins and the process by which they cause blood clots is not known.

Organizations related to Antiphospholipid Syndrome

APS Foundation of America, Inc
PO Box 801
La Crosse WI 54602-0801
Phone #: 608-782-2626
800 #: N/A
e-mail: [email protected]
Home page: http://www.apsfa.org
American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: [email protected]
Home page: http://www.aarda.org/
Antiphospholipid Antibody Support Group
Marvin Nelson
Apex NC 27539-7282
Phone #: 919-362-8977
800 #: N/A
e-mail: N/A
Home page: http://www.egroups.com/group/aplsuk
AutoImmunity Community
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: [email protected]
Home page: http://autoimmunitycommunity.org
Autoimmune Information Network, Inc
PO Box 4121
Brick NJ 08723
Phone #: 732-664-9259
800 #: N/A
e-mail: [email protected]
Home page: http://www.aininc.org
European Society for Immunodeficiencies (ESID)
c/o Dr. Esther de Vries
Hertogenbosch None 5200 ME's
Phone #: +31- 73--6992965
800 #: N/A
e-mail: [email protected]
Home page: http://www.esid.org
Hughes Syndrome Foundation
Louise Coote Lupus Unit
London None SE1 7EH
Phone #: 020-7-1-88-8217
800 #: N/A
e-mail: [email protected]
Home page: http://www.hughes-syndrome.org
International Scleroderma Network
7455 France Ave So #266
Edina MN 55435
Phone #: 952-831-3091
800 #: 800-564-7099
e-mail: [email protected]
Home page: http://www.sclero.org
Lupus Foundation of America, Inc.
2000 L Street NW
Washington DC 20036
Phone #: 202-349-1155
800 #: 800-558-0121
e-mail: [email protected]
Home page: http://www.lupus.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
National Alliance for Thrombosis and Thrombophilia
120 White Plains Road
Tarrytown NY 10591
Phone #: 914-220-5040
800 #: 877-466-2568
e-mail: [email protected]
Home page: http://stoptheclot.org/index.htm
National Stroke Association
9707 East Easter Lane
Englewood CO 80112-3747
Phone #: 303-649-9299
800 #: 800-787-6537
e-mail: [email protected]
Home page: http://www.stroke.org
Platelet Disorder Support Association
133 Rollins Avenue
Rockville MD 20852
Phone #: 301-770-6636
800 #: 877-528-3538
e-mail: [email protected]
Home page: http://www.pdsa.org
Thrombophilia Awareness Project
None
None None None
Phone #: --
800 #: --
e-mail: [email protected]
Home page: http://www.fvleiden.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html