Disorder Subdivisions
PO Box 801
La Crosse WI 54602-0801
Phone #: 608-782-2626
800 #: N/A
e-mail: [email protected]
Home page: http://www.apsfa.org
22100 Gratiot Avenue
Eastpointe MI 48021
Phone #: 586-776-3900
800 #: 800-598-4668
e-mail: [email protected]
Home page: http://www.aarda.org/
Marvin Nelson
Apex NC 27539-7282
Phone #: 919-362-8977
800 #: N/A
e-mail: N/A
Home page: http://www.egroups.com/group/aplsuk
None
None None None
Phone #: (91-9) -552-9057
800 #: N/A
e-mail: [email protected]
Home page: http://autoimmunitycommunity.org
PO Box 4121
Brick NJ 08723
Phone #: 732-664-9259
800 #: N/A
e-mail: [email protected]
Home page: http://www.aininc.org
c/o Dr. Esther de Vries
Hertogenbosch None 5200 ME's
Phone #: +31- 73--6992965
800 #: N/A
e-mail: [email protected]
Home page: http://www.esid.org
Louise Coote Lupus Unit
London None SE1 7EH
Phone #: 020-7-1-88-8217
800 #: N/A
e-mail: [email protected]
Home page: http://www.hughes-syndrome.org
7455 France Ave So #266
Edina MN 55435
Phone #: 952-831-3091
800 #: 800-564-7099
e-mail: [email protected]
Home page: http://www.sclero.org
2000 L Street NW
Washington DC 20036
Phone #: 202-349-1155
800 #: 800-558-0121
e-mail: [email protected]
Home page: http://www.lupus.org
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: [email protected]
Home page: http://www.madisonsfoundation.org
120 White Plains Road
Tarrytown NY 10591
Phone #: 914-220-5040
800 #: 877-466-2568
e-mail: [email protected]
Home page: http://stoptheclot.org/index.htm
9707 East Easter Lane
Englewood CO 80112-3747
Phone #: 303-649-9299
800 #: 800-787-6537
e-mail: [email protected]
Home page: http://www.stroke.org
133 Rollins Avenue
Rockville MD 20852
Phone #: 301-770-6636
800 #: 877-528-3538
e-mail: [email protected]
Home page: http://www.pdsa.org
None
None None None
Phone #: --
800 #: --
e-mail: [email protected]
Home page: http://www.fvleiden.org
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
İçerik bulunamadı.
İçerik bulunamadı.