Disorder Subdivisions
75 Maiden Lane
New York NY 10038
Phone #: 212-668-1000
800 #: 800-465-4837
e-mail: [email protected]
Home page: http://www.liverfoundation.org
Division of Pediatric Gastroenterology and Nutrition
Cincinnati OH 45229
Phone #: 513-559-4200
800 #: --
e-mail: N/A
Home page: N/A
27033 McBean Parkway
Valencia CA 91355
Phone #: 661-263-9099
800 #: 877-679-8256
e-mail: [email protected]
Home page: http://www.classkids.org
c/o Joan Hines, The Children's Hospital
Aurora CO 80045
Phone #: 720-777-2598
800 #: N/A
e-mail: [email protected]
Home page: http://www.rarediseasesnetwork.org/clic
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: [email protected]
Home page: http://www.netnet.net/mums/
Endocrine Diseases Metabolic Diseases Branch
Bethesda MD 20892-3570
Phone #: 301-654-3810
800 #: --
e-mail: [email protected]
Home page: http://www.niddk.nih.gov
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
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