Diencephalic Syndrome / Disease

Diseases & Conditions

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Diencephalic Syndrome

Synonyms of Diencephalic Syndrome

Diencephalic Syndrome of Childhood
Diencephalic Syndrome of Emaciation
Paramedian Diencephalic Syndrome
Russell's Diencephalic Cachexia
Russell's Syndrome

Disorder Subdivisions

General Discussion
The diencephalic syndrome is a very rare neurological disorder characterized by failure to thrive, abnormal thinness (emaciation), amnesia, intense sleepiness, unusual eye position and sometimes blindness. It is normally seen in infancy or early childhood but some cases have been reported in older children and even adults. Diencephalic syndrome is usually caused by a brain tumor such as a low-grade glioma or astrocytoma..

Organizations related to Diencephalic Syndrome

American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta GA 30329
Phone #: 404-320-3333
800 #: 800-227-2345
e-mail: N/A
Home page: http://www.cancer.org
Children's Brain Tumor Foundation
274 Madison Avenue
New York NY 10016
Phone #: 212-448-9494
800 #: 866-228-4673
e-mail: info@cbtf.org
Home page: http://www.cbtf.org
Friends of Cancer Research
2231 Crystal Drive
Arlington VA 22202
Phone #: 703-302-1503
800 #: N/A
e-mail: info@focr.org
Home page: http://www.focr.org
Guardians of Hydrocephalus Research Foundation
2618 Avenue Z
Brooklyn NY 11235
Phone #: 718-743-4473
800 #: 800-458-8655
e-mail: GHRF2618@aol.com
Home page: N/A
Hydrocephalus Association
870 Market Street
San Francisco CA 94102
Phone #: 415-732-7040
800 #: 888-598-3789
e-mail: pip@hydroassoc.org
Home page: http://www.hydroassoc.org
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
National Brain Tumor Society
124 Watertown Street, Suite 2D
Watertown MA 02472
Phone #: 617-924-9997
800 #: (80-0) -770-8287
e-mail: info@braintumor.org
Home page: http://www.braintumor.org
National Hydrocephalus Foundation
12413 Centralia
Lakewood CA 90715-1623
Phone #: 562-924-6666
800 #: 888-857-3434
e-mail: nhf@earthlink.net
Home page: http://www.nhfonline.org
Pediatric Brain Tumor Foundation
302 Ridgefield Court
Asheville NC 28806
Phone #: 828-665-6891
800 #: 800-253-6530
e-mail: N/A
Home page: http://www.pbtfus.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html