Diseases & Conditions


Ewing's Sarcoma

Synonyms of Ewing's Sarcoma
  • EFT
  • Ewing Family of Tumors
  • Ewing Tumor
  • TEF
  • Tumor of the Ewing Family (TEF)

Disorder Subdivisions

  • Askin's Tumor
  • Ewing's Sarcoma of Bone
  • Extraosseous Ewing's (EOE) Sarcoma
  • Primitive Neuroectodermal Tumor (PNET)

General Discussion
Ewing?s sarcoma is a rare bone tumor that occurs most often in adolescents. It may also arise outside of the bone in soft tissue (extraosseous Ewing?s sarcoma). Ewing?s sarcoma is related to another type of tumor known as primitive neuroectodermal tumor (PNET). Researchers have learned that both of these tumors arise from the same primitive cell and now refer to these tumors as the Ewing family of tumors (EFT). This general term encompasses Ewing?s sarcoma of bone, extraosseous Ewing?s sarcoma, primitive neuroectodermal tumor, and Askin?s tumor (a tumor of the chest wall). Ewing?s sarcoma of bone accounts for approximately 87 percent of the tumors in this family. Ewing?s sarcoma of bone most often affects the long bone of the legs (femur) and flat bones such as those found in the pelvis and chest well. Ewing?s sarcoma is an aggressive cancer that may spread (metastasize) to the lungs, other bones, and bone marrow potentially causing life-threatening complications. The exact cause of these tumors is unknown.

Organizations related to Ewing's Sarcoma
  • American Cancer Society, Inc.
    1599 Clifton Road NE
    Atlanta GA 30329
    Phone #: 404-320-3333
    800 #: 800-227-2345
    e-mail: N/A
    Home page: http://www.cancer.org
  • BeatSarcoma
    143 28th Street
    San Francisco CA 94131
    Phone #: 415-651-4473
    800 #: N/A
    e-mail: [email protected]
    Home page: N/A
  • Cancer.Net
    American Society of Clinical Oncology
    Alexandria VA 22314
    Phone #: 571-483-1780
    800 #: 888-651-3038
    e-mail: [email protected]
    Home page: http://www.cancer.net/patient
  • Friends of Cancer Research
    2231 Crystal Drive
    Arlington VA 22202
    Phone #: 703-302-1503
    800 #: N/A
    e-mail: [email protected]
    Home page: http://www.focr.org
  • Lance Armstrong Foundation
    PO Box 161550
    Austin TX 78716-1150
    Phone #: 512-236-8820
    800 #: 866-235-7205
    e-mail: N/A
    Home page: http://www.livestrong.org
  • MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
    150 Custer Court
    Green Bay WI 54301-1243
    Phone #: 920-336-5333
    800 #: 877-336-5333
    e-mail: [email protected]
    Home page: http://www.netnet.net/mums/
  • Madisons Foundation
    PO Box 241956
    Los Angeles CA 90024
    Phone #: 310-264-0826
    800 #: N/A
    e-mail: [email protected]
    Home page: http://www.madisonsfoundation.org
  • March of Dimes Birth Defects Foundation
    1275 Mamaroneck Avenue
    White Plains NY 10605
    Phone #: 914-428-7100
    800 #: 888-663-4637
    e-mail: [email protected]
    Home page: http://www.marchofdimes.com
  • National Cancer Institute
    6116 Executive Blvd, MSC 8322, Room 3036A
    Bethesda MD 20892-8322
    Phone #: 301-435-3848
    800 #: 800-422-6237
    e-mail: N/A
    Home page: http://www.cancer.gov
  • National Coalition for Cancer Survivorship
    1010 Wayne Avenue
    Silver Spring MD 20910-5600
    Phone #: 301-650-9127
    800 #: 877-622-7937
    e-mail: [email protected]
    Home page: http://
  • OncoLink: The University of Pennsylvania Cancer Center Resource
    3400 Spruce Street
    Philadelphia PA 19104-4283
    Phone #: 215-349-5445
    800 #: --
    e-mail: [email protected]
    Home page: http://www.oncolink.upenn.edu
  • Rare Cancer Alliance
    1649 North Pacana Way
    Green Valley AZ 85614
    Phone #: 520-625-5495
    800 #: --
    e-mail: [email protected]
    Home page: http://www.rare-cancer.org
  • Sarcoma Alliance
    775 E. Blithedale #334
    Mill Valley CA 94941
    Phone #: 415-381-7236
    800 #: --
    e-mail: [email protected]
    Home page: http://www.sarcomaalliance.org
  • Sarcoma Foundation of America
    9884 Main Street
    Damascus MD 20872
    Phone #: 301-253-8687
    800 #: --
    e-mail: [email protected]
    Home page: http://www.curesarcoma.org
  • Wellness Community
    919 18th Street N.W.
    Washington DC 20006
    Phone #: 202-659-9709
    800 #: 888-793-9355
    e-mail: [email protected]
    Home page: http://www.thewellnesscommunity.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html