Klippel-Trenaunay Syndrome / Disease

Diseases & Conditions

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Klippel-Trenaunay Syndrome

Synonyms of Klippel-Trenaunay Syndrome

Angio-Osteohypertrophy Syndrome
Congenital Dysplastic Angiectasia
Hemangiectatic Hypertrophy
Klippel-Trenaunay-Weber Syndrome
KTS
KTW Syndrome
Osteohypertrophic Nevus Flammeus

Disorder Subdivisions

General Discussion
Klippel-Trenaunay Syndrome, a rare disorder that is present at birth (congenital). Klippel-Trenaunay syndrome consists of the triad of cutaneous capillary malformation (port-wine stain), bone and soft tissue hypertrophy, and venous varicosities. Lymphatic malformations also can be present. The symptoms and findings associated with the disorder vary in range and severity from case to case.

Organizations related to Klippel-Trenaunay Syndrome

HemiHypertrophy Support
4581 Magnolia Dr.
Suffolk VA 23435
Phone #: 757-271-9000
800 #: N/A
e-mail: administrator@hemisupport.com
Home page: http://www.hemisupport.com
Klippel-Trenaunay Support Group
5404 Dundee Road
Edina MN 55436
Phone #: 952-925-2596
800 #: --
e-mail: j.vessey@att.net
Home page: http://www.k-t.org
Lymphovenous Canada
8 Silver Ave
Ontario Intl M6R 1X8
Phone #: 416--53-3-2428
800 #: N/A
e-mail: info@lymphovenous-canada.ca
Home page: http://www.lymphovenous-canada.ca
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay WI 54301-1243
Phone #: 920-336-5333
800 #: 877-336-5333
e-mail: mums@netnet.net
Home page: http://www.netnet.net/mums/
Madisons Foundation
PO Box 241956
Los Angeles CA 90024
Phone #: 310-264-0826
800 #: N/A
e-mail: getinfo@madisonsfoundation.org
Home page: http://www.madisonsfoundation.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains NY 10605
Phone #: 914-428-7100
800 #: 888-663-4637
e-mail: Askus@marchofdimes.com
Home page: http://www.marchofdimes.com
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
Bethesda MD 20892-2540
Phone #: 301-496-5751
800 #: 800-352-9424
e-mail: braininfo@ninds.nih.gov
Home page: http://www.ninds.nih.gov/
National Organization of Vascular Anomalies
PO Box 0358
Findlay OH 45840-0358
Phone #: N/A
800 #: N/A
e-mail: Khall@mail.novanews.org
Home page: http://www.novanews.org
Nevus Network
The Congenital Nevus Support Group
West Salem OH 44287
Phone #: 419-853-4525
800 #: --
e-mail: info@nevusnetwork.org
Home page: http://www.nevusnetwork.org
Sturge-Weber Foundation
PO Box 418
Mt. Freedom NJ 07970
Phone #: 973-895-4445
800 #: 800-627-5482
e-mail: swf@sturge-weber.org
Home page: http://www.sturge-weber.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html